Myeloma Patient and Family/Friends Information Day
A Myeloma Patient, Family and Friends Information Day will be held on Tuesday 26th June as part of Myeloma Awareness Week 2012. The Information Day will take place in the Midland Regional Hospital, Tullamore, Co Offaly from 11.30am – 4.30pm. Speakers include: Dr G Crotty, Dr Perera, Louise Keegan (CNS), Mary Kelly (ANP), [...]
Myeloma Awareness Week 2012
Myeloma Awareness Week runs from June 21 – June 28, 2012. Please spread the word about myeloma with friends and family, on websites, boards and on social media. We are asking you to share information about this disease with just one person. Request one of our leaflets on Myeloma or refer people to this [...]
National Rare Disease Day on February 29
Tomorrow, February 29th is National Rare Disease Day and the Joint Committee on Health and Children will focus on rare diseases in Ireland when it meets with a number of groups dealing with rare diseases tomorrow, Wednesday, 29th February. To mark National Rare Disease Day, Genetic and Rare Disorders Organisation; Rare Diseases Taskforce; Rett [...]
Daffodil Day 2012
Daffodil Day is one of the big fundraising days each year for the Irish Cancer Society. This year it falls on Friday March 23rd. Look out for fundraising events in your local area. Better still – you can fundraise for Daffodil Day within your club, business, organisation or community by selling Daffodil merchandise or [...]
Daffodil Centres Spring Up
The Irish Cancer Society provides Daffodil Centres in Irish hospitals. Daffodil Centres provide cancer information, support and advice in local hospitals. The centres are an extension of the Irish Cancer Society’s Cancer Information Service. With the Daffodil Centres the ICS aims to provide a wide range of information locallyto anyone affected by or concerned [...]
Myeloma Information Evening
A Myeloma information evening will be held on Monday 27 June 2011 as part of Myeloma Awareness Week 2011. The information evening will provide an opportunity to hear from experts in the field and to meet other people interested in this disorder. Topics covered will be: Understanding myeloma diagnosis, Myeloma management, Autologus transplant in Myeloma and Living [...]
MyMyeloma Design a Christmas Card Winners
Last year we put out the call for some designs for our first ever MyMyeloma charity Christmas cards. We had a huge response and as a result we had to defer printing our Christmas cards until this year. We will have our first charity Christmas cards available this year and we are delighted to be [...]
Quoted Moments on sale now
Quoted Moments is a stunning publication containing breathtaking photogaphy, inspirational quotes and heartfelt poetry. All proceeds are in aid of the Irish Cancer Society. For further information see www.quotedmoments.com
Myeloma Radio
Myeloma Radio, the first radio station in the world dedicated solely to myeloma, is one of a range of services made available by Myeloma UK. Listen into a range of people including myeloma patients, family members, healthcare professionals and staff from Myeloma UK. Whether you want to listen to the personal experiences of myeloma patients, [...]
Helpline numbers for people affected by Myeloma
There are two helpline numbers that people can access if they have concerns or queries about Myeloma. The first is the National Cancer Helpline number for Ireland and that is 1800 200 700. The second is a helpline operated by Myeloma UK which is 1800 937 773. This helpline is available Monday – Friday 9am [...]
Support Groups
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Arc Myeloma Support Group
June 17th, 2011
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Newbridge Myeloma Support Group
June 17th, 2011
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Midlands Myeloma Support Group
June 17th, 2011
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Why Join A Support Group
June 17th, 2011
News
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Rare Diseases Ireland latest newsletter
June 20th, 2012
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Myeloma Patient and Family/Friends Information Day
June 20th, 2012
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Myeloma Awareness Week 2012
June 20th, 2012
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A Myeloma story from America
March 13th, 2012
Latest blog posts
Rare Diseases Ireland latest newsletter
June 20th, 2012
Multiple Myeloma is classed as a rare disease. In Ireland, as in many countries around the world we have an organisation which is representing rare diseases. In Ireland that organisation is the GRDO. The GRDO was incorporated in 1988 and its first achievement was to successfully lobby for a dedicated national centre for medical genetics [...]










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